Wow. Its really disheartening that in light of so many tragedies, such as Henrietta Lacks and Jesse Gelsinger, that researchers can get consent with out providing all the information about a trial. Aside from that I cannot believe that Pfizer would give a trial medication over a proven one during an epidemic situation, that's disgusting to me. I think that its good that this book about Henrietta Lacks was written. I think it will help laymen see the problems with experimental trials and hopeful it will encourage society to set strict regulations for INFORMED patient consent. I would think divulging that info to patients would be only beneficial since all these lawsuits would be avoided. There will always be people willing to guinea-pig for financial means and sick people in need of trials when there are no other options. But lying for profit like Wilson, no, that's totally unreasonable and unethical!
It is very admirable for Jesse and his family to agree to the study even when they knew that he would not likely benefit from it. What really made me mad was how the researchers witheld information about the study from the family (particularly the risks) especially when there were adverse affects in both animal and human studies. Again, it's another case of some people willing to make sacrifices for the sake of others while a few idiots more concerned with making money are screwing the innnocent and giving researchers a bad name.
Discoveries are made because of people like Jesse and his family. There needs to be better regulation for clinical trials. No one who has a financial interest in a drug should be part of the trial. I would definitely have second thoughts if I knew someone had the potential to make a lot of money off a therapy. Good intentions but hideously executed. It’s discouraging to see that scientists are still mistreating people all over the world. It seems like our morals are not developing to consider the common welfare of others. The present day mad-scientists are more terrifying than those from the past.
This reminds me of a potent drug test used on military personnel. The subjects were told that they were testing for an entirely different experiment, but in fact, were given deadly doses of a toxic drug. They were really quantifying the lethal dose in humans. One person died from the test, all the others suffered detrimental physiological effects.
Wow. Its really disheartening that in light of so many tragedies, such as Henrietta Lacks and Jesse Gelsinger, that researchers can get consent with out providing all the information about a trial. Aside from that I cannot believe that Pfizer would give a trial medication over a proven one during an epidemic situation, that's disgusting to me. I think that its good that this book about Henrietta Lacks was written. I think it will help laymen see the problems with experimental trials and hopeful it will encourage society to set strict regulations for INFORMED patient consent. I would think divulging that info to patients would be only beneficial since all these lawsuits would be avoided. There will always be people willing to guinea-pig for financial means and sick people in need of trials when there are no other options. But lying for profit like Wilson, no, that's totally unreasonable and unethical!
ReplyDeleteIt is very admirable for Jesse and his family to agree to the study even when they knew that he would not likely benefit from it. What really made me mad was how the researchers witheld information about the study from the family (particularly the risks) especially when there were adverse affects in both animal and human studies. Again, it's another case of some people willing to make sacrifices for the sake of others while a few idiots more concerned with making money are screwing the innnocent and giving researchers a bad name.
ReplyDeleteDiscoveries are made because of people like Jesse and his family. There needs to be better regulation for clinical trials. No one who has a financial interest in a drug should be part of the trial. I would definitely have second thoughts if I knew someone had the potential to make a lot of money off a therapy. Good intentions but hideously executed.
ReplyDeleteIt’s discouraging to see that scientists are still mistreating people all over the world. It seems like our morals are not developing to consider the common welfare of others. The present day mad-scientists are more terrifying than those from the past.
This reminds me of a potent drug test used on military personnel. The subjects were told that they were testing for an entirely different experiment, but in fact, were given deadly doses of a toxic drug. They were really quantifying the lethal dose in humans. One person died from the test, all the others suffered detrimental physiological effects.
ReplyDelete